
PHOTO: °”ÍűTV LANGONE STAFF
Running had always been a big part of her life, so when Tammy Fabish began feeling queasy during her runs, the New Jersey mother of three knew something was off. Even walking hand in hand with her preschool-aged twins felt physically taxing. When one boy lurched forward, she would lose her balance. She figured her mom-on-the-go lifestyle was getting the best of her: âI wasnât sleeping well, I wasnât taking care of myself, and then COVID hit.â
In 2021, Tammy began seeing doctors again, among them an ear, nose, and throat specialist near her Morris County home. The hearing in her right ear seemed muffled. She thought she needed earwax removal, but that wasnât the problem. A brain MRI revealed a vestibular schwannoma, also known as an acoustic neuroma. This type of tumor sits on the vestibulocochlear nerve, which runs from the inner ear to the brain. It plays a role in hearing and balance.
Neither she nor her husband, William, her longtime running partner, were prepared for the diagnosis. âNever in a million years did I imagine I had a brain tumor,â the now 49-year-old concedes. âI kind of went into shock.â
Acoustic neuromas are noncancerous but can lead to ringing in the ear and hearing loss, as well as vertigo and balance issues. Left untreated, the tumor can grow and compress the brain and nearby nerves that control facial movement and sensation, speech, and swallowing. An estimated 1 in 100,000 people in the United States are diagnosed with these tumors each year.
A friend insisted on driving Tammy into Manhattan to consult the experts at °”ÍűTV Langone Health who specialize in treating these tumors. After meeting with Donato R. Pacione, MD, associate professor in the , and David R. Friedmann, MD, associate professor in the , Tammy knew she was in the right place. âIf someoneâs touching my brain, I want it to be them,â she concluded. âThey really listened to who I am as a person. I felt so heard.â
A Smile-Saving Surgery
For small, asymptomatic acoustic neuromas, doctors often suggest watchful waiting. But considering Tammyâs balance and hearing issues and the size of the tumorâabout 2 centimeters acrossâher surgical team recommended either Gamma Knife radiosurgery to destroy the abnormal tissue and stop the mass from growing, or surgery to remove it entirely.
âThey really listened to who I am as a person. I felt so heard.â
âTammy Fabish
Tammy decided to have the tumor removed. But how, exactly? Her surgeons explained the options. One would be to reach the tumor by way of the inner ear, reducing the risk of severing or otherwise damaging the thin nerve that controls the muscles of the face. âA translabyrinthine approach allows us to identify the facial nerve much earlier in the procedure, resulting in better facial nerve outcomes,â explains neurotologist Dr. Friedmann, who specializes in the treatment of conditions affecting hearing, balance, and the vital structures at the skull base. This approach made sense, as Tammyâs hearing had already declined.
The other option, a retrosigmoid approach, would mean taking a more circuitous route to the tumor, through the occipital bone in the back of the head. This hearing-sparing surgery is often the choice when patients still have hearing that can be preserved.
âItâs not a one-size-fits-all scenario,â notes Dr. Pacione, a neurosurgeon specializing in skull base surgery. âIf you donât take into account peopleâs goals and their values, you wonât be doing them a service.â To Tammy, the choice was clear: âAt the end of the day, Iâm a substitute teacher for little kids, and I smile a lot with my own kids,â she says. âI really wanted my smile.â
On October 15, 2021, a multidisciplinary team gathered in °”ÍűTV Langoneâs Kimmel Pavilion for the roughly four-and-a-half-hour surgery. It began with an incision behind Tammyâs ear. For the next hour or so, Dr. Friedmann drilled away bone, working around important blood vessels, clearing a direct path to the tumor, and identifying the facial nerve that the team would protect throughout the procedure. This allowed Dr. Pacione to open the outer covering of the brain to access the brainstem and separate and remove the tumor from surrounding nerves.
Tiny electrodes placed in Tammyâs facial muscles made it possible for neurophysiologists in the room to monitor her facial muscle contractions during the procedure and provide real-time feedback to the surgical team. Abdominal fat was removed from a small incision just below her belly to help seal the bony opening at the end of the procedure. This would prevent cerebrospinal fluid, which surrounds the brain, from leaking out.
Adjusting to a New Normal
In the first month after surgery, Tammy would see her kids off to school and then go back to sleep or sit quietly to recover. âI felt completely overwhelmed,â she recalls. âMy brain was trying so hard to rework itself.â
With the vestibular system in her right inner ear out of commission from the tumor, Tammyâs brain had to rely on the left side for information to help with movement and balance. âItâs exercising the good side instead of trying to make sense of the bad side,â says Dr. Pacione.
By January, Tammy was cautiously pounding the pavement again. âI was very conscious of every little dip in the sidewalk. It was almost like talking myself through the run, telling my brain what my eyes were seeing.â
These days, running comes naturally. So, when the opportunity arose this April to run the Jersey City Marathon, Tammy didnât hesitate. She crossed the finish line more than 5 hours later, greeting her husband, 10-year-old daughter, and 7-year-old twins with a wide grin. âI was just so excited to accomplish my goal,â she says. âI was running again, and I realized that there is a world where Iâm still going to have this piece of me.â
Expert Care and Kindness
Initially, Tammy had been reluctant to travel to New York City for treatment. Now she praises every detail of her °”ÍűTV Langone experience, from the surgeons who removed the tumor from her brain to the security guard who escorted her to the elevator bank during his lunch break. âPeople were so nice to me at every turn,â she says.
It wasnât just kindness that won her over. Tammy benefited from a team-based approach, pairing the surgical expertise of a neurosurgeon and a neurotologist. Plus, because °”ÍűTV Langone is a referral center, our surgeons perform more than 100 acoustic neuroma surgeries a year, and help care for an even greater number of patients having radiosurgery or being carefully watched with regular imaging.
âIt was an amazing experience to have these brilliant, renowned doctors care about what I wanted out of this,â she adds. âWe talked about every little detail.â And that is something to smile about.