True to Its Founderâs Philosophy of Caring for the Whole Person, Rusk Rehabilitation Marshalls a Multidisciplinary Team to Treat a Baby with a Rare Neuromuscular Disease

Physical therapist Cassandra Ruff uses water therapy to strengthen Ryan Ahn Joelsonâs respiratory muscles, with the goal of reducing his need for ventilator support.
Photo Courtesy of Jennifer Ahn
If Howard A. Rusk, MD, who founded °”ÍűTV Langone Healthâs Rusk Rehabilitation 75 years ago as the worldâs first comprehensive medical training program in rehabilitation medicine, could see 18-month-old Ryan Ahn Joelson in action, he would find proof of his belief that people with disabilities produce their own miracles. If he could witness the multidisciplinary team that tends to Ryanâs every need, he would be heartened that his philosophy of âcaring for the whole personâ endures.
Ryan was born at Tisch Hospital, eight weeks premature and with no detectable heart rate, on January 17, 2022. The 4.4-pound infant was resuscitated and then transferred to its Neonatal Intensive Care Unit (NICU), tethered to breathing and feeding tubes. Ryan was diagnosed with congenital myotonic dystrophy, a rare neuromuscular disease that causes severe weakness and breathing difficulties.
Therapists began treating Ryan in the NICU, part of Hassenfeld Childrenâs Hospital at °”ÍűTV Langone, to help him thrive as early as possible. At the age of 10 months, he was stable enough to begin a comprehensive outpatient pediatric rehabilitation program. In coordination with Patricia T. Tan, MD, medical director of Rusk Rehabilitationâs pediatric physical medicine and rehabilitation service, and neurologist Mary-Lynn Y. Chu, MD, director of the Elly Hammerman Center for the Treatment of Neuromuscular Disorders at °”ÍűTV Langone Orthopedic Hospital, a team of physical, occupational, speech, and swallowing therapists developed a care plan to maximize Ryanâs capabilities. At the hospital, he receives various therapies, including pool exercises, three days a week. His mother, Jennifer Ahn, often attends the sessions so that she and her husband, Andrew, both physicians, can ensure continuity of care at home to accelerate Ryanâs developmental progress.
âRyanâs therapists are wonderful. They believe in him to reach his fullest potential. I canât imagine where weâd be without them.â
âJennifer Ahn, Ryan's Mom
âPlay is the most meaningful occupation of childhood because thatâs how children learn and discover,â explains occupational therapist Kristen Olwell. âRyan is incredibly motivated by play, which we use to improve his strength and motor skills,â adds physical therapist Jessica Hubert. Ryan can now sit up independently, which allows him to visualize and interact with his environment, both critical to his development.
âRyanâs therapists are wonderful,â says his mother. âThey believe in him to reach his fullest potential. I canât imagine where weâd be without them.â
Dr. Tan believes that Ruskâs deep commitment to patients and their families explains why itâs consistently ranked the No. 1 rehabilitation program in New York State and one of the top 5 in the country by U.S. News & World Report. âThis is the beauty of Rusk Rehabilitationâtreating mind, body, and spirit,â she says. âIn less than a year, Ryanâs progress has been amazing. At this rate, heâs going to surprise all of us.â